Planning To Go Out With CMT – Holiday Edition

First, let me start by saying I am a fan of autumn and the holiday season but this year has been a bit more stressful than expected. I feel like every day is building on top of one another to create this mountain of stress. I am hoping to get my climbing gear and begin …

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Being Comfortable With My Disabilities and Decisions

Denial is a powerful thing. I was in denial for almost 25 years that I was very sick. I made choices from a place of denial. My frustration came from that same place. The thought of me not being about to fix myself made me feel out of control. I tried for years to fix …

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Carry-over Fatigue

Recently, I started to notice that daily life activities have been draining me of energy at a higher rate than my normal baseline. So, over the last few weeks, I have been observing my daily activities more closely and what I discovered is that depending on the way your particular disease responds to fatigue there seems to be a bit …

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Invisible Anxiety

As a person with chronic health issues, I find myself with invisible anxiety. This anxiety is not seen by others but it is felt by me. I only notice it after I become very anxious. This invisible anxiety would present itself as frustration. I don’t feel that frustration is the best way to deal with …

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