Category: Scoliosis

Do you accept yourself?

Have you ever asked yourself if you have accepted your life with a chronic illness? I hadn’t until a few weeks ago. I spent a lot of my time dealing with things that occur in my life and trying to overcome the trials and tribulations of having a chronic illness. I thought because I am going through the motions that I had accepted my chronic illness. I was kind of shocked when I thought about it. I have been sick all my life and I have yet to accept my chronic illness. If I think about the surgery I had in March 2018, my doctor stated all the problems that he was repairing because of my illness but I still didn’t accept it. I know I have a chronic illness but I think that if you don’t fully accept your chronic illness, it may become difficult to heal some of the emotional hardships caused by your chronic illness. Although the physical bumps and bruises healed, the emotional ones have not. You must also heal the mind and the soul, not just the body. I have been only working on accepting myself and my chronic illness for a short time but I have seen the benefits of self-acceptance. I recommend you try to work on your self-acceptance and see what it does for you. I will leave you with this quote “The worst loneliness is to not be comfortable with yourself.” ― Mark Twain

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2019 has began. Now what?

The start of the year can be a stressful time. I woke up yesterday and today feeling the pressure to start things. The people around me also seemed a bit more rushed than in the days prior. This created a feeling of tension for me which I am trying to manage better this year.  I had decided prior to the end of the year that I would try something new.  I am going to try to schedule things I need to do weekly. I know this might seem like no big deal but for me, it is! I was never able to stick to a schedule in my life so I hope that this year will be different. I am going to not think about the new restrictions that could occur but the freedom and the joy of accomplishment I will feel when things are complete.  I struggle with restrictions because I always felt my CMT created a lot of aspects of my life that were restricted. However, this past year, I learned that schedules and restrictions can create even more time. This sounded crazy to me too when I first heard it.  I am proud to say that it is true for me.  I started this toward the end of 2018 so I have a bit of rhythm going into 2019.  I would recommend you try it out. If it doesn’t work you can always go back to what works for you. I wish you all the best for the rest of the new year.  I will leave you with this quote “You gotta make it a priority to make your priorities a priority.” ― Richie Norton

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5 lessons I learned this year – 2018 Edition

This year has been another life-changing one for me. I said that last year but it’s true this year as well. As I reflect on the events of this year I am hopeful that next year will bring more peace, joy, and happiness. I learned a lot about myself and others this year. Some good things and some bad but all of the moments had value. I am going to reflect on 5 lessons.

  1. Be kind to yourself and others. This is something I strive for on a daily basis. I believe that the universe is filled with energy and if you would like to get good energy and vibes from the world you must put the same energy out into the world. I have seen how this has greatly impacted my life for the better. I know with a chronic illness some days are tough but I encourage you to try this in the new year and I am sure you won’t be disappointed.
  2. Try new things. I tried a lot of new things and pushed myself out of my comfort zone. This was good for me. I encourage you to try new things this year and you might be surprised how many of the new things you love that may also make your life much easier.
  3. Find the right fit for you and nobody else. I notice that what works for me may not work for others. You are probably thinking, Duh? Am I right? I look for places that give me good vibes so I encourage you to do the same. If you have found your groove in the world in all the aspects of your life, I applaud you for that. If you are like me and have not figured that out yet I recommend that you keep searching for the things that feel right to you.
  4. Listen to your body. I said this last year but I think this needs to be mentioned again. I have noticed that when I spent less time thinking about what is good for my body and more time trusting that my body knows what it needs I have better days. I like to work on the basics of a happy life such as good sleep, diet and most importantly a healthy environment. This will give you a safe space so your physical, mental and emotional health can thrive.
  5. Worry less about the things you cannot control. This was very hard for me. I am a worrier and very opinionated. I would spend a lot more time thinking about solving other peoples problems more than my own. This created more problems than solutions. If I spend more time solving some of my problems, I feel better physically and mentally about the situation. Take the time to take of your needs more this year.

I am hopeful that next year will bring new experiences and new lessons that will help me move forward. I hope to share those ne experiences with you. Best wishes and Happy New Year! I will leave you with this quote “Tomorrow, is the first blank page of a 365-page book. Write a good one.” ― Brad Paisley

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Planning To Go Out With CMT – Holiday Edition

First, let me start by saying I am a fan of autumn and the holiday season but this year has been a bit more stressful than expected. I feel like every day is building on top of one another to create this mountain of stress. I am hoping to get my climbing gear and begin my climb to the summit but that has not happened yet. This was a year with a lot of surprises and as a person with CMT, I prefer a more planned approach because I need to have a plan in place for the things that could happen such as bad weather, unusally placed stairs, slippery floors and find out if the event has ADA accessibility. This is something new for me this year, I would normally just go with the flow. This worked for me most of the time but a few times I paid the price of a week of rest but at a minimum, it would cause stress that would upset my stomach and create body aches. This became progressively worse as the event continued so by the time the night ended something fun had become something that was another bad memory in my holiday past. I told myself this year will be different and I got my wish kind of because it is unlike any other holiday season before it. I find that a detailed plan helps to create a feeling of preparedness which helped my understanding of the situation and realize I had done all I could do to make the best of this occasion and it is time to trust myself and enjoy the party. I did enjoy the party even though things were not perfect and unexpected things happened like icy curbs and wet mopped floors which are not the best for someone with CMT. However, I made it through and so can you! I would just say it will take some extra planning…I never thought I would say that but it has helped me reduce my social anxiety a lot.  I wish you good luck in making the best plan for you this holiday season!  I will leave you with this quote “Plans are of little importance, but planning is essential.” ― Winston Churchill

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