Tag: Mindset

Do you accept yourself?

Have you ever asked yourself if you have accepted your life with a chronic illness? I hadn’t until a few weeks ago. I spent a lot of my time dealing with things that occur in my life and trying to overcome the trials and tribulations of having a chronic illness. I thought because I am going through the motions that I had accepted my chronic illness. I was kind of shocked when I thought about it. I have been sick all my life and I have yet to accept my chronic illness. If I think about the surgery I had in March 2018, my doctor stated all the problems that he was repairing because of my illness but I still didn’t accept it. I know I have a chronic illness but I think that if you don’t fully accept your chronic illness, it may become difficult to heal some of the emotional hardships caused by your chronic illness. Although the physical bumps and bruises healed, the emotional ones have not. You must also heal the mind and the soul, not just the body. I have been only working on accepting myself and my chronic illness for a short time but I have seen the benefits of self-acceptance. I recommend you try to work on your self-acceptance and see what it does for you. I will leave you with this quote “The worst loneliness is to not be comfortable with yourself.” ― Mark Twain

Quote from Goodreads

Why having uncomfortable conversations should be part of your 2019 resolutions

This year you should have more uncomfortable conversations. This a resolution that many people forget about every year. I feel this just may be the thing that you need for more personal growth in 2019. You can learn so much more in these uncomfortable conversations. I noticed that after the conversation ended we both felt our perspective was heard. This is a very important part of a conversation. For many people, to be heard is more important than someone just listening. An uncomfortable opinion can be a good or bad thing depending on the situation. I have had many uncomfortable conversations about my chronic illness. Most of the time when I mention Charcot Marie Tooth, I have to relate it to Multiple Sclerosis or Muscular Dystrophy so people can understand what it is like. The shocked look that people have says it all. They tell me “But you don’t look sick” like that is a compliment. I think that this year it is important to see things from different perspectives more than ever before. Have a calm conversation with someone that may not share your opinion. Make sure the other person is open to being heard and you are open to the same. Being uncomfortable is not always a bad thing because in the right circumstance it may end up turning into a life-changing experience. I will leave you with this quote “A person’s success in life can usually be measured by the number of uncomfortable conversations he or she is willing to have.”Timothy Ferriss

Quote from Goodreads

2019 has began. Now what?

The start of the year can be a stressful time. I woke up yesterday and today feeling the pressure to start things. The people around me also seemed a bit more rushed than in the days prior. This created a feeling of tension for me which I am trying to manage better this year.  I had decided prior to the end of the year that I would try something new.  I am going to try to schedule things I need to do weekly. I know this might seem like no big deal but for me, it is! I was never able to stick to a schedule in my life so I hope that this year will be different. I am going to not think about the new restrictions that could occur but the freedom and the joy of accomplishment I will feel when things are complete.  I struggle with restrictions because I always felt my CMT created a lot of aspects of my life that were restricted. However, this past year, I learned that schedules and restrictions can create even more time. This sounded crazy to me too when I first heard it.  I am proud to say that it is true for me.  I started this toward the end of 2018 so I have a bit of rhythm going into 2019.  I would recommend you try it out. If it doesn’t work you can always go back to what works for you. I wish you all the best for the rest of the new year.  I will leave you with this quote “You gotta make it a priority to make your priorities a priority.” ― Richie Norton

Quote from Goodreads

The importance of mental toughness when you have a chronic illness

Physical toughness has always been something I felt was important.  With my chronic illness, there are a lot of bumps and bruises that I endure on a daily basis. Today I would like to discuss the importance of mental toughness when battling the daily struggles of a chronic illness.  The daily stresses on top of the stresses caused by our health with a dash of the holiday season can make a typical tough day into a very stressful or even an overwhelming day.  On days like these, it is hard to make the people around you understand what you are going through.  In the past, I have called my daily struggle with chronic illness the sickness slide. My day is a constant struggle of trying to reach the top of the slide only to slide back down to different levels. This creates a tedious and sometimes repetitive pattern to try to recreate some of the successes I had in the past. Whether that success is less pain or more energy, I am always hopeful that a good day might be right around the corner as long as I have the mental toughness to keep going. However, as many of you may have experienced, chronic illness can change day by day or even hour by hour depending on your illness. Also, most people do not realize that a lot of people with chronic illnesses may have multiple illnesses. I personally have Charcot Marie Tooth, Scoliosis, IBS and Eczema, In addition, I also I have other ailments from surgeries such as hip tendinosis and localized muscle weakness and repetitive motion injuries like a strained bicep. Lastly, there could be side effects from medications, allergies and/or environmental changes like the changing of the seasons that can all affect how I feel.  Most people notice my CMT because it is the most pronounced and visible. Also, all the conditions I mentioned above are happening concurrently so I cannot just deal with them individually.  I usually address the ones that are bothering me the most for that day.  So, as we are nearing the end of the year, I hope that you and everyone around you know what kind of mental toughness it takes for you just to make it through the day.  I understand we do not do this by ourselves, some of us have support systems. I am personally very grateful for my support system.  The earnest is on us to create, maintain and build our mental toughness to hopefully improve our daily lives living with a chronic illness. I will leave you with this quote  “You can have anything you want if you are willing to give up the belief that you can’t have it.” – Robert Anthony, Positively Positive 

Quote from Thought Catalog 

Being Comfortable With My Disabilities and Decisions

Denial is a powerful thing. I was in denial for almost 25 years that I was very sick. I made choices from a place of denial. My frustration came from that same place. The thought of me not being about to fix myself made me feel out of control. I tried for years to fix myself and when I could not I felt worse than before.  I recently made a big change in my life and after I made the decision and all aspects of it had been finalized I began to tell everyone in my life about what I decided. I was nervous because for me this was a life changing and difficult decision but when I told everyone they were relieved. I was surprised to find out that everyone was happy for me and felt I had made the right choice and wished I would have made it earlier in my life. I did not know that they felt the stress that I felt. After a few weeks of coming to terms with all that has happened over the last few months, I realized that being comfortable with yourself is a powerful thing and It’s effects may reach further than you could imagine. I am looking forward to being comfortable with myself from today on and I learned the best gift I can give to myself and everyone else is to be my true self and do what is best for me. I will leave you with this quote “The moment will arrive when you are comfortable with who you are, and what you are– bald or old or fat or poor, successful or struggling- when you don’t feel the need to apologize for anything or to deny anything. To be comfortable in your own skin is the beginning of strength.” ― Charles B. Handy

Being Yourself

Sometimes being yourself can be the hardest thing to be. I have always been a bit different. I have a different perspective on the world. I never really followed any particular path but I always seem to land where I am suppose to be. CMT has made me realize that sometimes our weakness can our biggest strengths. I feel that the unique person I am can only come from being a person with CMT. I think that when you are being yourself you encounter a lot of people that try to discourage you from being yourself but if you stay true to yourself, the reward will be worth the strife. I find beauty in moments that I may not have paid attention to. I marvel at the simplest things that other can do that I cannot and I appreciate the things I can do that others may not be able to do. It is easy to be influenced by society’s pressure to conform but just like a lump of coal that has pressure applied to it a diamond can be created. Being myself is the most powerful thing I can be and I have learned that I am not willing to give my power away for any reason. I have done this in the past only to regret it. I know that sometimes life will test me but I feel that I have failed a lot of those tests in the past. I have discovered that being myself is the cheat sheet of passing all of life‘s tests in the future. I will leave you with this quote “To be yourself in a world that is constantly trying to make you something else is the greatest accomplishment.” 
― Ralph Waldo Emerson

Quote Via Goodreads

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